A companion for the whole rare disease journey
Your rare disease, remembered.
From diagnosis through every treatment, hard week and good stretch, Engram helps you understand, manage and keep track of your rare disease. Each companion is built for one disease and speaks its language.
Engram Health
Trust, data stewardship, one platform
Engram MG
Available now
Myasthenia gravis
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Future companions
The whole journey
A rare disease is lived every day, not just at appointments.
From the first confusing months after diagnosis to the treatment that finally works, Engram is with you for all of it, and keeps the memory so you don’t have to carry it alone.
Understand
Learn your disease in plain language, with a guide who knows it.
Live day to day
Quick check-ins on symptoms and energy, even on a hard day.
Manage treatments
Medications, infusions and side effects, and a clear view of what is working.
Get through hard moments
Log flares as they happen and keep an Emergency Card ready for urgent care.
Work with your care team
Prepare for visits and share your record with doctors and family.
See the long view
Your journey over months and years, in one place, so patterns and progress are easy to see.
Why one disease at a time
Health apps track steps. Engram speaks your disease.
| Feature | Generic health app | Engram |
|---|---|---|
| Vocabulary | Steps, sleep, mood | Your disease’s own terms and subtypes |
| Measures | Free-form ratings | Standard patient-reported scales for that disease |
| Rhythm | Daily logging | Infusion cycles, tapers, flares, crisis readiness |
| Hard moments | Not considered | Flare logging and an Emergency Card for urgent care |
| Care team | Exports, if any | Visit prep, a doctor-ready summary and sharing with family |
| Guidance | A generic chatbot | A guide grounded in your disease |
Our first companion
Engram MG
For people living with myasthenia gravis, from diagnosis onward.
- Learn about MG with Mary, a guide who knows it
- Daily check-ins that take seconds, even on a hard day
- Treatments, infusions and side effects in MG’s own terms
- An Emergency Card ready for urgent care
- Your MG Journey over time, and a Doctor Packet to share
Trust
Your record is yours. Research is your choice.
What patients record between visits is the part of a rare disease research rarely sees. With permission, de-identified and combined, it helps the field understand the disease as it is lived.
Free, always
No subscriptions or paywalled features for patients.
Your record is yours
You decide what is shared, and you can delete it.
Aggregates only
Partners see de-identified, combined insights, never individuals.
Research is opt-in
Joining a study is always a separate yes.
Hosted on HIPAA-eligible cloud infrastructure under business associate agreements.
For partners
Longitudinal, disease-native insight from the people living it.
Advocacy organizations
A free, co-branded companion for your members and community-level insight.
Clinicians
Prepared patients and a structured view of the months between visits.
Research and industry
Consented, de-identified, longitudinal patient-reported insight.
“A newly diagnosed patient asked me what had worked for me, and I couldn’t reconstruct my own history. Engram started that night.”
MG patient, Founder